Are you on any meds? MedHelp is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. plus its not at night only, my arms hurt during the day. American Academy of Sleep Medicine Clinical Practice Guideline. Non-drug treatments. It typically happens in the evening or nighttime hours when you're sitting or lying down. I tend to just walk around and it resolves (most the time not fully like yourself). Ok so I am almost 3 years from onset of symptoms, currently classified as "probable ALS" by my neuro at the ALS clinic, and for the past few months I've been experiencing something new - an almost uncontrollable urge to stretch my legs first thing in the morning, and sometimes when I have sat for awhile. pandiculation Add to list Share. stretching your muscles daily. As 4 my legs no answers could chop them off until the morn just to I get a decent nights sleep. Hoping you may have found answers by now to help us. I am so sorry to read that you are suffering in this way and I genuinely hope that you can find some resolution and relief to this issue. It's a hugely difficult task, particularly because the more you think about it, or worry about it, the worse it gets. Following good sleep habits, including avoiding reading, watching television or being on a computer or phone while lying in bed; getting 7 to 9 hours of sleep and following other healthy sleep habits. Unfortunately, when he does it, it effects the blood flow to his brain and sometimes he passes out or has seizure like activity. Are partially or totally relieved by activities such as stretching, walking or exercising the affected muscles. . Your email address will not be published. Im 27 and have had this sciatic pain (?) cross-training for sports by weightlifting or choosing another activity to strengthen your muscles. Support groups bring together . Researchers suspect the condition may be caused by an imbalance of the brain chemical dopamine, which sends messages to control muscle movement. From the tip of my nose to the tip of my toes. Have an urge or desire to move your legs (or arms), usually occurring together with uncomfortable sensations such as pulling, tugging, crawling, itching, aching, or burning. Lack of sleep? I do have an iron deficiency that I have to keep in check so I started taking regular vitamins. Garcia-Borreguero D, et al. Sounds to me like you're unconsciously aware of when your body's needing to be stretched. I thought I was the only one as well, I have never seen anyone like me before. In others, these movements are an ongoing problem and may worsen over time. Hey folks, I gather that this could fit in a few catergories so I am going to ask here and you may be able to point me in the right direction. I wouldn't worry about it if it isn't impeding your ability to recover or contributing to injuries. (n.d.). Not touching that again. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Often times people with RLS want to walk around and shake their legs (or arms) to help relieve the uncomfortable sensations. We are a volunteer-driven support group launched in 2003 for those affected by ALS. Also, sometimes, I stretch 4 or 5 times (entire body) in a row or minutes apart? Examples of uncontrollable movements are: Loss of muscle tone (flaccidity) Slow, twisting, or continued movements (chorea, athetosis, or dystonia) Sudden jerking movements . Some people with RLS never seek medical attention because they worry they won't be taken seriously. RLS runs in families and is also associated with many conditions and diseases and medications. This happened to me, and it turned out that I have a Chiari malformation that required brain surgery, as well as POTS, postural orthostatic tachycardia syndrome. information submitted for this request. Such known medications include antidepressants, allergy drugs and anti-nausea medications. Accessed Nov. 16, 2021. Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked. Cramps, spasticity, spasms. People have different interpretations. Have you considered Yoga/ mindfulness/ meditation etc. Find a sleep facility near you. Ok so I am almost 3 years from onset of symptoms, currently classified as "probable ALS" by my neuro at the ALS clinic, and for the past few months I've been experiencing something new - an almost uncontrollable urge to stretch my legs first thing in the morning, and sometimes when I have sat for awhile. Im not sure if its something that has just become a habit or if its something more serious? Ive seen too neurologists. This is sometimes completely appropriate. In general, involuntary movement suggests damage to nerves or areas of your brain that affect motor coordination. It seems to be worse when Im stressed. Hope you feel better soon xx, Has anyone figgered out why we do what we do? As long as it isn't a "bad" pain, you're all good in my eyes. You may also feel stiffness after periods of inactivity, like when you get out of bed in the morning or get out of a chair after sitting for a long time. I've noticed since I've started back that I have this almost uncontrollable urge to stretch my muscles almost constantly. However, it isnt relieved by doing so. Involuntary pulling of the neck. (Question). (Solved). Whether you have TD or another condition, the effects of any medication need to be examined during testing. exaggeration of reflexes. Less commonly, the sensations affect the arms. It feels so good to release it, and then I feel all rubbery and sleepy and fuzzy inside. Mayo Clinic does not endorse companies or products. I have had EMG testing done on my legs with zero results showing anything wrong.. i take sleeping pill called ambien, which worked like nothing other.. lately my DEEP arm pain awakens me leaving Me wide awake .. i just want to sleep normally again .. iam 32 and cant imagine another 30 years (god willing) of this nightmare phantom pain and urge.. this annoying and life changing pain forever looms in shadow. It may not display this or other websites correctly. The urge to stretch drives me crazy! https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Restless-Legs-Syndrome-Fact-Sheet. Neurology. Take advantage of mobility drills as well and don't just limit it to static stretching - try and stretch your muscles through dynamc movement too! Ive ready a few things online, most forums say either OCD or RLS. There are several types of involuntary movements. I get the 'urge' to stretch - usually my fingers, wrist, elbow and knees - I get a funny yet uncomfortable sensation in these areas that force me to stretch them. AskMayoExpert. A tremor is a possible cause of leg shaking. Ive had this on and off for a couple years now, and it goes in phases of weeks at a time where it happened every night (to varying degrees). How is the cause of uncontrollable movement diagnosed? I feel your frustration as I get this as well. Ive had RLS since I was a teenager and it used to be the case that lying down did get rid of it. We need to take him to a behavior modification specialist. I am totally like this too. Comorbidities, treatment and pathophysiology in restless legs syndrome. Its definitely not RLS because I have it all over my body, arms, legs, stomach, neck, wrists. Rigor mortis is a good example of a Latin term (one in this case that was coined in the 19th century) remaining intact in contemporary medical usage (and crime writing). My whole entire body stretches. Restless legs syndrome care at Mayo Clinic. I normally get up and have a warm drink and a couple of co codamol. Mayo Clinic is a not-for-profit organization. The way I see it, the Cheat & Recover is overloading your muscles like crazy. Cheryl. Shaking isn't always a cause for worry. What seems to make the movements worse or better? some times it makes my vision go out slightly and i end up doing these strange jerk motions where my legs start to just give out and i fight to stay up or sometimes even i lose control of my arms, once i was in the bath and it happened and caused me to fall over, i went to the school nurse that morning as i also had a violent headache and dizzy she said i was dehydrated. Link to post thank god I found people talking about this online, because I thought no one understood me! I am quite a panicer when it comes to my health haha. They may occur naturally: However, they can also be due to serious underlying health conditions, such as: Tics are sudden, repetitive movements. Stiff-person syndrome (SPS) is a rare acquired neurological disorder characterized by progressive muscle stiffness (rigidity) and repeated episodes of painful muscle spasms. X, Me and my sister have this usually during spring/summertime! Fecal incontinence is sometimes called bowel incontinence. Mayo Clinic. I have had this for the past 15 or so years. Review/update the Stress can adversely affect your bodys nervous system including your nerves and how they function. New York: Kaplan Publishing, 2009. Researchers have identified sites on the chromosomes where genes for RLS may be present. At first I thought it was just because I'd gotten out of the daily habit, when I started on the 1st I started lighter than what I'd been doing before to build back up for the gains I'd lost, but it's been every day since. Before I knew that RLS was a 'real condition' and that others also suffered from it, I used to describe it as a fight between body and brain - body wants to, and needs to, rest, but brain wont let it. It's hard to explain other than a feeling that I need to stretch. If its the same thing have no choice but to stretch effected areas, hard to explain, horrible and only during the night. When I lay down in bed it seems to be a lot better. and let your body loosen. But afterwards I can feel my heart pound like I stretched that too. It does not sound like RLS - although it could be - but whatever it is it is getting worse. Uncontrollable, uncomfortable urge to stretch back and abdomen muscles. If there is a problem with any of these, it can cause incontinence. MedHelp is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. Tardive dyskinesia information page. I heard that it has something to do with iron storage and my iron keep decreasing so I take an iron pill everyday.

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